Interactive Tick-Borne Illness Map (And a Quick Update)

Discover Magazine is doing something really cool regarding Lyme. This website invites people to plot where they believe they were bitten by a tick and give a 100 word blurb about their story. It’s pretty neat!

When I went to plot my bite, I saw that there was less than 10 plots in California! More people need to fill this thing out. I know for a fact that there are 1000s of people in California who have Lyme. I also know that I am not the only person who was bitten in Sacramento county. Where are all my other Sacramento Lyme support group friends?

Out of curiosity, I also looked up how many plots were in Oregon. There’s only one person so far! Like I said, more people need to do this.

The point of the map is to show just how skewed the CDC’s numbers are. If even 50% of the people in the world with Lyme actually filled this out, we would really surprise some folks! This visualization shows just how wide-spread Lyme really is.

For all my fellow Lymies out there, please fill this out.

Here’s the link!

Interactive Tick-Borne Illness Map | DiscoverMagazine.com.

In other news, I’m really looking forward getting back on antibiotics. Some of my symptoms that had gone away when I was on abx are starting to come back. I’m having really annoying tinnitus, headaches, and insomnia.

The tricky part is that I can’t go back on antibiotics until I take care of my awful awful awful problems with Candida. I’ve tried 4 different anti-fungals and none of them have worked. This week, my LLMD gave me a prescription for some boric acid suppositories. I think it’s too early to tell whether or not they’re working yet, but I have high hopes. The quicker I take care of Candida, the quicker I can get back on antibiotics. And the sooner I get back on those bad boys, the sooner these stupid symptoms will get better.

Also, I just found out I need to get my wisdom teeth pulled. Yaaaaaaaaaay. It’s happening this Friday and I’m worried about it. I’ve heard horror stories of Lymies who get oral procedures done and have their Lyme totally flare up in the process. I decided to be honest with the dentist and tell him I have Lyme. I also told him I’m worried about what’s going to happen afterwards. He said that since my bottom right wisdom tooth is the only one that is a serious risk, he would pull that one first and do the others at a later time. So at least I don’t have to get all four out at once! I’m just trying to be as cautious as possible with this.

Wish me luck, friends!

Best,

Sofia

Quick Update: 2AM and not feeling great

This past week has been a rollercoaster of good days and bad days. The first part of the week, I got a raging headache everyday- always in the afternoon. My temples felt like they were going to burst. Sensitivity to light and sound did not help either. The only thing that makes these headaches go away is sleep. Every time I decided to sleep it off, I wouldn’t wake up for hours, sometimes even the next day. That happened 3 times this week.

Weirdly, Thursday and Friday I didn’t get headaches at all! Amazing! Yet, as soon as I thought they were over and done with, they reappeared Saturday and again on Sunday. What’s the deal?!

Also, my hair has been falling out. I’m finding my hair EVERYWHERE- all over my house. My guess is that it’s from stopping antibiotics, which I’ve been off of for almost a month. Last summer when I took a break from antibiotics, this same thing happened. I’m determined not to let it get the best of me though! I’m going to try taking Biotin tablets, which has had some successful results with other Lymies. One more pill to add to the ever-growing list!

Lastly, joint pain again. As always, it’s worst in my hands. The pain makes doing just about anything difficult. I’ve never noticed how much I rely on my hands until it hurts to use them!

This is what I do when I have joint pain in my hands. Lay down and watch Netflix.

This is what about 60% of my life looks life. Bed+ blanket+ Netflix. Currently enjoying Star Trek. 

This is what I do pretty much every time I feel bad. Pop on Netflix and try and relax a bit. Netflix is great. Once you pick out a show to watch, you can sit there for like 3 hours and never have to use your hands! After one episode ends, it automatically cues the next one for you! Perfect for joint pain! And insomnia, too.

I’m pretty sure this is all happening because I’m herxing off of my new herbal, MC-BAR-1. The drops are tasteless and tiny; I guess I underestimate how much they’ll affect me.

Like every herx, this will soon pass. In the mean time, more blankets and tv! Yay!

Best,

Sofia