What is she talking about?
In posts, I frequently use words that are familiar to the Lyme community, but not to the general public. Here’s a glossary of all the Lyme related words I use in my posts.
Biofilms- Groups of cells that stick together. In Lyme, this happens with Lyme bacteria. Biofilms are often hard to break down and also contributes to the reason why Lyme is so difficult to treat.
Bullseye Rash- A rash that sometimes appears in people who are bitten by ticks. According to ILADS, fewer than 50% of people bitten by a tick carrying Lyme have a bullseye rash appear where they were bitten. I did not get a bullseye rash.
CDC- The Center for Disease Control. The national center that creates protocols for various diseases followed by the entire United States.
Co-infection- Other tick-borne diseases that often accompany Lyme. Some include: Bartonella, Babesia, Rocky Mountain Spotted Fever, and Ehrlichia. There are several other less common ones. Most people with Lyme also have a co-infection.
Detox- Short for detoxification. When killing Lyme bacteria, it is important to have a way for the dead bacteria to be released from the body.
Herx- Short for Herxheimer Reaction. It occurs when symptoms become aggravated for a short (or long) period of time. Usually caused by a change in protocol.
IDSA-Infectious Disease Society of America. The bad guys. Their guidelines for what is considered Lyme is very narrow and strict (and completely ineffective).
ILADS- International Lyme and Associated Diseases Society. The good guys. This is a society made up of open-minded doctors who prescribe effective treatment, including long-term antibiotics.
LLMD- Lyme Literate Medical Doctor. A doctor who is knowledgeable regarding Lyme disease and tick borne illnesses.
Lymie- A term of endearment that refers to a person battling Lyme. For example, I’m friends with lots of Lymies Facebook.
Probiotics- Live bacteria that have health benefits. They can help with a number of symptoms including candida, gut problems, diarrhea, inflammatory bowel diseases, and others.
Pulsing- A method of taking antibiotics. When pulsing, a person takes the antibiotics for a certain amount of days, stops for a set amount of days, then continues taking them again. Some antibiotics are really harsh on the body. By pulsing, the antibiotic does not hit the body as hard but the person still gets the positive effects from it. For example, when I took Tindamax, I pulsed it one week on, one week off, then one week on.